John Clark

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Message 1231326 - Posted: 13 May 2012, 0:37:45 UTC

Welcome back to the boards John. I wish you well.
[/quote]

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Message 1231429 - Posted: 13 May 2012, 5:27:29 UTC - in response to Message 1231070.  

Wow

I am overwhelmed, and thanks to all well wishers.

I hope to start the chemo next Monday orr Tuesday, which, I hope, includes bone marrow stem cell treatment of my own stem cells. Ten years ago this was all new.


Kidneys behaving and look like returning to some normalite in about two weeks.

Again, thanks for the well wishers.

John

We're all thinking of you John. Get well soon. xx
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Message 1231451 - Posted: 13 May 2012, 6:22:47 UTC - in response to Message 1231429.  

Good moaning all on this dry, so far, and coolish Sunday.

Thanks to ES and James for the posts (and Bernie)
It's good to be back amongst friends and colleagues



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Message 1231456 - Posted: 13 May 2012, 6:57:35 UTC - in response to Message 1231451.  

Good moaning all on this dry, so far, and coolish Sunday.

Thanks to ES and James for the posts (and Bernie)



Good morning John. Get well soon.

Listen to what the doctors and the nurses tell you to do. Keep us updated on the progress please.


WARNING!! "THIS IS A SIGNATURE", of the "IT MAY CHANGE AT ANY MOMENT" type. It may, or may not be considered insulting, all depending upon HOW SENSITIVE THE VIEWER IS, to certain inputs to/from the nervous system.
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Message 1231465 - Posted: 13 May 2012, 8:04:00 UTC

John, there are several ways of getting out of hospital:

Good behaviour, doing what the nurses and doctors tell you, when they tell you, and being friendly to them all. (This can involved a degree of "controlled flirting" with selected female staff members - good luck on finding the right ones :-) )

Bad behaviour, not doing what you are told and generally upsetting the staff; this doesn't always work as planned because they know how to smile sweetly and make you scream.



There is at least one more, but we aren't going there are we.
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Message 1231478 - Posted: 13 May 2012, 9:09:25 UTC - in response to Message 1231465.  

John, there are several ways of getting out of hospital:

Good behaviour, doing what the nurses and doctors tell you, when they tell you, and being friendly to them all. (This can involved a degree of "controlled flirting" with selected female staff members - good luck on finding the right ones :-) )

Bad behaviour, not doing what you are told and generally upsetting the staff; this doesn't always work as planned because they know how to smile sweetly and make you scream.



There is at least one more, but we aren't going there are we.


No way
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Message 1231532 - Posted: 13 May 2012, 13:02:31 UTC

Just had a PM from my brother, after he set up a profile but needs some credit.

The day gets better and betterer ...

Also just spoke to our daughter, who returned to London.
It's good to be back amongst friends and colleagues



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Message 1231658 - Posted: 13 May 2012, 18:35:22 UTC - in response to Message 1231532.  

Just had a PM from my brother, after he set up a profile but needs some credit.

The day gets better and betterer ...

Also just spoke to our daughter, who returned to London.

What's your brothers avatar going to be, John. Will it be fryer Tuck or
Little John.


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belong to a formal team so "fly their own kites" - as the saying goes.
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Message 1231697 - Posted: 13 May 2012, 20:12:02 UTC - in response to Message 1231658.  

Just had a PM from my brother, after he set up a profile but needs some credit.

The day gets better and betterer ...

Also just spoke to our daughter, who returned to London.

What's your brothers avatar going to be, John. Will it be fryer Tuck or
Little John.




Most likely Friar Tuck.

I think he, Uncle Vanya, is most likely to use the PM comms whih work OK
It's good to be back amongst friends and colleagues



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Message 1231809 - Posted: 14 May 2012, 1:20:04 UTC

Good to hear from you John. Do as you're told & you should be fine


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Message 1231921 - Posted: 14 May 2012, 7:16:28 UTC

I always do a instructed by the Medicos .....
It's good to be back amongst friends and colleagues



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Message 1231923 - Posted: 14 May 2012, 7:23:20 UTC - in response to Message 1231921.  

Aye up...good to see you John....

Remember...Always look on the bright side of life.....
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Message 1231948 - Posted: 14 May 2012, 11:25:47 UTC

Hello John! I hope all is going as best as it can for you. It is very good to see your posts. We are all thinking about you.

Steve
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Message 1232024 - Posted: 14 May 2012, 15:16:09 UTC - in response to Message 1231948.  

Much appreciated, Steve.

Now lumbared with movement restriction arm braces to protect weak/thin bones. BUGGER.

Still waiting chemo team doctor visit. All very leisurley when I want to get on with things.
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Message 1232044 - Posted: 14 May 2012, 16:01:46 UTC

Hi John, Are you still able to pinch a good looking nurse with your arms tied up? We here at Seti are pulling for you.
[/quote]

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Message 1232088 - Posted: 14 May 2012, 18:00:24 UTC - in response to Message 1231197.  
Last modified: 14 May 2012, 18:04:14 UTC

So you have a little Myeloma, huh. I wish you well. Autologous stem cell replacement is an excellent treatment and has come a long way in the last 10-15 years. The only bad part, for everyone other than you, is the smell. Stem cells are preserved in glycerine and frozen with liquid nitrogen. When the cells are returned to you the Glycerine comes along for the ride. That smell is something to behold.

I'm betting you'll do fine. Glad to have you back!!!


Is that the real reason I will be isolated for 4 weeks in a isolation room?

Actually the real reason is that they are going to harvest stem cells after pumping you full of neupogen. This act creates immature WBC(White Blood Cells) and quite a few stem cells in the act. Once they harvest a sufficient quatity they'll Medically burn off your bone marrow. which means you'll have no immune system for a while. You'll also Have no RBC's(Red Blood Cells) or Platelets being produced. Which also means you'll probably be receiving routine transfusions of WBC poor blood and Platelets. You'll probably not like how you feel at that point.

Once they have established that your bone marrow isn't producing cells for a short period of time(days to a week or more) then they'll give your stem cells back to you. Over several weeks the Stem Cells will reestablish themselves in your Marrow and start producing "Normal" blood cells free of the disease. It may take some time to recover completely from this.

I really think you are in good hands. You're going to do great.

/edit
I forgot to mention that while you are immune suppressed they'll be pumping you full of antiviral, antibiotics and antifungal meds to keep the nasties away.

No worries you'll do fine
In a rich man's house there is no place to spit but his face.
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Message 1232115 - Posted: 14 May 2012, 19:05:14 UTC - in response to Message 1232088.  

So you have a little Myeloma, huh. I wish you well. Autologous stem cell replacement is an excellent treatment and has come a long way in the last 10-15 years. The only bad part, for everyone other than you, is the smell. Stem cells are preserved in glycerine and frozen with liquid nitrogen. When the cells are returned to you the Glycerine comes along for the ride. That smell is something to behold.

I'm betting you'll do fine. Glad to have you back!!!


Is that the real reason I will be isolated for 4 weeks in a isolation room?

Actually the real reason is that they are going to harvest stem cells after pumping you full of neupogen. This act creates immature WBC(White Blood Cells) and quite a few stem cells in the act. Once they harvest a sufficient quatity they'll Medically burn off your bone marrow. which means you'll have no immune system for a while. You'll also Have no RBC's(Red Blood Cells) or Platelets being produced. Which also means you'll probably be receiving routine transfusions of WBC poor blood and Platelets. You'll probably not like how you feel at that point.

Once they have established that your bone marrow isn't producing cells for a short period of time(days to a week or more) then they'll give your stem cells back to you. Over several weeks the Stem Cells will reestablish themselves in your Marrow and start producing "Normal" blood cells free of the disease. It may take some time to recover completely from this.

I really think you are in good hands. You're going to do great.

/edit
I forgot to mention that while you are immune suppressed they'll be pumping you full of antiviral, antibiotics and antifungal meds to keep the nasties away.

No worries you'll do fine


There is one guy just been through the stem cell treatment. Says, desite feeling bad and sleeping 14 hours a day, he reccomends the treatment. Average longterm survivl is considerably better than standard chemo.
It's good to be back amongst friends and colleagues



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Message 1232135 - Posted: 14 May 2012, 19:49:48 UTC

We're all rooting for you John!


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Message 1232167 - Posted: 14 May 2012, 20:57:15 UTC

Average longterm survivl is considerably better than standard chemo.

Sounds to me that you'll be around then to receive the queens telegram
for hitting the good-old ton then, John....can't be bad.... yippee & thumbs-up.






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belong to a formal team so "fly their own kites" - as the saying goes.
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Message 1232296 - Posted: 15 May 2012, 2:39:51 UTC

John, so glad to see you back.
See prayer works!
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