John Clark - continued


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Profile Chris S
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Message 1245532 - Posted: 13 Jun 2012, 20:37:51 UTC

Positive news John, thanks for sharing. :-)


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Message 1245546 - Posted: 13 Jun 2012, 20:56:46 UTC

things are moving in the right direction.

Looks good on Ya' john..

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Message 1245569 - Posted: 13 Jun 2012, 21:30:55 UTC - in response to Message 1245502.

Well, I now know the type of myeloma I have - kappa light chain multiple myeloma, or Bence Jones myeloma. This, it seems, occurs in about 20% of this problem.

The good thing is the light chain base line, before any chemo, has a measured figure of 6,959 (what ever that actually means). After this first month treatment, the kappa light chain factor has been dramatically reduced to 89 ... some reaction and the start of winning.

Now we just keep it down and squash it out of existence over time.

It also appears one of the reasons for my recent tiredness may be that I am anemic! Going in for a 3 unit/pint blood transfusion Monday. I would much prefer the transfusion to be a blended version of Landlord beer.

Now onwards and upwards.

Well that sounds good, beating back the infernal myeloma, as to being anemic, if this were Halloween You could go dressed up in a cape, just for the humor, in any case I hope Ya feel better soon John, especially after you've had a bite, er a fresh pint added. ;) <ducks>
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Message 1245598 - Posted: 13 Jun 2012, 22:19:51 UTC

Thanks for the news John. And even better the Doctor is recommending three pints as well :)
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Message 1245609 - Posted: 13 Jun 2012, 22:47:38 UTC

Bring a pint of you favorite brew and have them add it to the mix ...

Get well my friend, get well.
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Message 1245707 - Posted: 14 Jun 2012, 4:06:09 UTC
Last modified: 14 Jun 2012, 4:06:42 UTC

I was white as a sheet last May. I brought my iron level up with lots of vegetables and supplement. The Dr deemed, I didn't need a transfusion. So yours must be bad. Rooting a speedy recovery.
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Message 1245709 - Posted: 14 Jun 2012, 4:10:41 UTC

Well I for one am glad that John and Uli are getting better, Me I just have water in My lower legs or at least it looks like water, go figure.
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Message 1245718 - Posted: 14 Jun 2012, 4:38:23 UTC

Thanks for your concern Vic. Thank goodness, I love spinach, lentils and brussel spouts. Yes yuck to most of you, but they brought me up to speed. The supplements were just for a booster.
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Message 1245734 - Posted: 14 Jun 2012, 5:21:22 UTC

Hey John, glad to hear things are moving in the right direction!

Anemia is something I know well. A few years ago I was diagnosed with severe anemia. I was prescribed IV iron infusions - many across many months, along with yucky oral iron. Worked like a charm and I'm good as new these days.

Wishing you a full recovery as well!

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Message 1245741 - Posted: 14 Jun 2012, 5:33:38 UTC - in response to Message 1245718.

Thanks for your concern Vic. Thank goodness, I love spinach, lentils and brussel spouts. Yes yuck to most of you, but they brought me up to speed. The supplements were just for a booster.

I used to have brussel spouts when My Brother cooked them, He used garlic salt on them to cut the taste, It's been 9 Years since He cooked them and I really don't although I could and they were very tasty. I like spinach too and other greens like swiss chard, problem is I don't have enough freezer capacity as My Mom introduced Me to these southern dishes. Sorry for drifting.
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Message 1245752 - Posted: 14 Jun 2012, 6:04:13 UTC

If John continues along this course we will have to address him as "Count John Dracula-Clark"...

(Young maidens beware ;-0 )
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Message 1245754 - Posted: 14 Jun 2012, 6:09:48 UTC - in response to Message 1245502.

Well, I now know the type of myeloma I have - kappa light chain multiple myeloma, or Bence Jones myeloma. This, it seems, occurs in about 20% of this problem.

The good thing is the light chain base line, before any chemo, has a measured figure of 6,959 (what ever that actually means). After this first month treatment, the kappa light chain factor has been dramatically reduced to 89 ... some reaction and the start of winning.

Now we just keep it down and squash it out of existence over time.

It also appears one of the reasons for my recent tiredness may be that I am anemic! Going in for a 3 unit/pint blood transfusion Monday. I would much prefer the transfusion to be a blended version of Landlord beer.

Now onwards and upwards.

Sounds like an excuse to hit the Guinness.
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Message 1245773 - Posted: 14 Jun 2012, 7:08:21 UTC - in response to Message 1245752.

If John continues along this course we will have to address him as "Count John Dracula-Clark"...

(Young maidens beware ;-0 )

LOL <slinks away stage left>
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Message 1245788 - Posted: 14 Jun 2012, 7:36:57 UTC - in response to Message 1245502.

Well, I now know the type of myeloma I have - kappa light chain multiple myeloma, or Bence Jones myeloma. This, it seems, occurs in about 20% of this problem.

The good thing is the light chain base line, before any chemo, has a measured figure of 6,959 (what ever that actually means). After this first month treatment, the kappa light chain factor has been dramatically reduced to 89 ... some reaction and the start of winning.

Now we just keep it down and squash it out of existence over time.

It also appears one of the reasons for my recent tiredness may be that I am anemic! Going in for a 3 unit/pint blood transfusion Monday. I would much prefer the transfusion to be a blended version of Landlord beer.

Now onwards and upwards.

Lori's chemo made her quite anemic on a couple of occasions as well....
Although not so serious as to require transfusions.

Your docs know what's best in your case, of course. But for Lori, they prescribed a weekly shot of Procrit until her red blood cell count was back within acceptable limits.
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Message 1245832 - Posted: 14 Jun 2012, 11:45:04 UTC

Thanks for the wishes after the update. I saw the initial results as positive, and wanted t share.

Update report by Count Ducula heading for more blood soon.
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Message 1246022 - Posted: 14 Jun 2012, 17:51:14 UTC - in response to Message 1245502.

Well, I now know the type of myeloma I have - kappa light chain multiple myeloma, or Bence Jones myeloma. This, it seems, occurs in about 20% of this problem.

The good thing is the light chain base line, before any chemo, has a measured figure of 6,959 (what ever that actually means). After this first month treatment, the kappa light chain factor has been dramatically reduced to 89 ... some reaction and the start of winning.

Now we just keep it down and squash it out of existence over time.

It also appears one of the reasons for my recent tiredness may be that I am anemic! Going in for a 3 unit/pint blood transfusion Monday. I would much prefer the transfusion to be a blended version of Landlord beer.

Now onwards and upwards.


That's good news John:) Hope everything goes well on monday.

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Message 1246025 - Posted: 14 Jun 2012, 17:53:13 UTC - in response to Message 1245832.

Thanks for the wishes after the update. I saw the initial results as positive, and wanted t share.

Update report by Count Ducula heading for more blood soon.

That's grand news, John...


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Message 1251775 - Posted: 26 Jun 2012, 11:32:57 UTC
Last modified: 26 Jun 2012, 11:40:52 UTC

Here is an update for you all upon John Clark's progress.

Mike from Germany was over in the UK a few days ago, and so we took the opportunity to pop up and see John for lunch. We were really pleased to see that he has progressed so well, bearing in mind how ill he was a short time ago. Both John and Sheila are very grateful for everyone's concern and good wishes, and thank you all very sincerely.

Here is John, Sheila, & Mike outside the Welby prior to having a few pints of Landlord. Although Mike to his credit did try it, he preferred the Fosters!





The meal was just as enjoyable as well.





After the pub lunch we went back to Johns house to meet the tribe of dogs. As John says, if you sit down in this house you get covered in Shih Tzu. Not easy to say after a few pints of Landlord.










It was really grand to see them both is such good spirits, and we all enjoyed the visit very much indeed. Keep it up John!
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Message 1251797 - Posted: 26 Jun 2012, 13:21:33 UTC

Thank you for the update and pictures Chris.

Its great to see him up and about.


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Message 1251806 - Posted: 26 Jun 2012, 13:59:20 UTC

That looks nice, glad to see everyone and that John is doing better.
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